Articles, Blog

Periods and Chronic Illness | What I Do on My Monthly ♀️ (3/28/18)

December 10, 2019


100 Comments

  • Reply shannon steinhauer March 30, 2018 at 2:28 am

    When I was 14 I had surgery to remove endometriosis and then 6 months later to remove a softball sized ovarian cyst. In the shorts months afterwards I was diagnosed with EDS,POTS,MCAD and many more health problems. Periods were such a pain anyway due to the endometriosis and cysts but chronic pain and health issues on top of it always sucked so my doctors did the same that yours did and put me on continuous birth control and it’s been such a help! As for sex and chronic illness, I’ll be very open and say that my boyfriend of seven years and I used to have sex more frequently before I got more and more sick. Now we take things alittle easier and go for maybe once a month. We are in college and he knows it’s hard enough for me to juggle school along with my health and doctors appointments and he never pressures me. He knows it hurts me and that it kills my joints and bones can slip out of place so easily for me that he is beyond gentle. It’s all about balance and being with someone who just gets you ❤️

  • Reply Hannah Llewellyn March 30, 2018 at 2:36 am

    Hey I didnt miss your video today I watch it on my kindle still going to watch it on my kindle friday on my phone or kindle becomes my phone in hook from my phone I love watching your video I never miss them becomes I love your adventures videos today

  • Reply Ben Matthews March 30, 2018 at 2:42 am

    Jaquie, you have a real gift for vlogging. Your.descriptions are clear and well done,you pace is perfect. You put out very professional videos. I can see that you will be a great communication major. (Beth)

  • Reply Kaalyn March 30, 2018 at 3:51 am

    I'm currently having the same issue with my cycle. It's always irregular, but when I have extra symptoms and procedures and nonsense, it goes away. …sometimes for months and years at a time. I'm also at a super low weight, but sometimes that doesn't matter — sometimes it's here even when I'm super underweight, and it also goes away even when my weight is better. It just really varies. And dysautonomia in general is great at throwing a wrench in things and deciding for itself when it wants to allow cycles, lol

  • Reply theuglyzone March 30, 2018 at 3:55 am

    I appreciate you keeping some things private. No offense to anyone but when certain things are shared no one is really comfortable!

  • Reply Bria Techeira March 30, 2018 at 4:08 am

    I take birth pills everyday to prevent having blood but I’m having one now it’s ok when I was younger I had very bad cramps and let me tell ya it was not fun so I know how are feeling ????

  • Reply Kaela Talbert March 30, 2018 at 4:10 am

    My periods were horrible too! My gynecologist suggested that I try Lysteda before thinking about birth control and it has worked amazing.

  • Reply Jane Tatum March 30, 2018 at 4:21 am

    My health issues all started at puberty too! ME/CFS, POTS, kyphosis, etc. Never been the same. Your painful periods surer sure sound like endometriosis. Oral contraceptives (synthetic hormones) can lower the immune system (makes low zinc, folate, some B vitamins per studies since the 70's) and cause GI issues. Watch BeautywithEmilyFox 's vid: https://youtu.be/30ME6cq1-qg

  • Reply Adrianna Roberts March 30, 2018 at 4:40 am

    I went on the depo shot and I don't have a period anymore . I had horrible symptoms with my period

  • Reply Meghan March 30, 2018 at 5:03 am

    I have PCOS and because of that I have ovarian cysts. I would get my period 1 month and miss 2 months. I would get excruciating pain. I couldn’t eat I couldn’t move and I would be in tears, I got put on the birth control pill to regulate my periods and hormones, it helped some but I would still get irregular periods and imbalanced hormones. So I got put on depo shot. And ever since I got it it’s been a life changer. No periods and very little pain.

  • Reply Sabrina Stone March 30, 2018 at 5:08 am

    I have never been diagnosed with cysts or anything else to make my periods “worse” or “very painful and rough” but I finally got sick of them and I was like “I don’t care put me on birth control” and I have been very happily free of periods for almost 2 years now! Praise the lord!!

  • Reply Mary Ellen Jeffords March 30, 2018 at 5:54 am

    i havent had a period in six years. my doctor informed me that just because you dont bleed doesnt mean your cycle is messed up or absent

  • Reply FadedPegasus h March 30, 2018 at 6:45 am

    I have a problem keeping pregnant past 20 weeks… And fighting the c word

  • Reply FadedPegasus h March 30, 2018 at 6:50 am

    Your will body shut down the least important organs in your body when your body is in stress

  • Reply Alyssa Winegarden March 30, 2018 at 7:00 am

    I had 14-18 day periods that were debilitating all the way through, until I had my first child. Then I went vegan and gluten free and my hormones regulated. I now have 5 day periods with little to no cramping, every 28 days.

    I feel for you, when it comes to irregularity and awful periods. They are not fun. Have you thought of having a hysterectomy? Weird question, I know, but it seems to be something that has helped a few of my chronically ill friends.

  • Reply Debbie Wenzel March 30, 2018 at 7:31 am

    Monthly cycles often cease when fat stores in the body are too low. It’s the body protecting itself from a pregnancy it can not sustain.

  • Reply Anna Spicer- Girl WithOut Guts March 30, 2018 at 7:35 am

    Yes, I had a horrible day Wednesday too. Crocodile tears for me, the pain was unbearable. But, I had to get things done, pushed through it, but cried every time I got back into my truck. My gastroparesis was off the chain! Sweetie, I haven't had mine in over3 years, but I am old enough to be your mom. Now experiencing MEN-0-PAUSE! Haven't you ever noticed that everything that is a bother, starts with MEN! 🙂 I had a hard time with mine too, I was put on Ultram before it became a narcotic.

  • Reply lesiebug March 30, 2018 at 8:56 am

    What are your views on surrogacy and would you consider it when you decide to have children

  • Reply ChronicallyAngel March 30, 2018 at 9:08 am

    I know how you feel about the irregular periods & stress I have ovarian cysts due to my Polycystic Ovary Syndrome (PCOS) I had monthly's until i was 17 then I had irregular periods but after I had my first daughter back in April 2015 i don't have any at all anymore but I now take B.C(birth control) to stop growth of cysts plus when I was having monthly's I was having between 10-15 epileptic seizures so the BC stops that and it is a little annoying how people ask about my monthly's and sex life so i feel you on that one

  • Reply snowbabygirl priv March 30, 2018 at 11:23 am

    I have abnormal periods i can go without having a period for eight months or nine months. I have to wear a depend because I bleed heavily. I can't remember what month,day and year it was. I was at my gram's place with my mom,little brother Phillip Douglas Edwards Jr. I started my period at 6:00am to 12:00pm. I have seizures so when I'm on my period i have more seizures and dizzy spells

  • Reply PamelaVL March 30, 2018 at 12:58 pm

    When you have these bad days, how do you handle Harlow going out side?

  • Reply Hannah Marie llewellyn Llewellyn marie March 30, 2018 at 1:08 pm

    All of them are different for all people girls with perds hope your doing well today juqie

  • Reply Margaret Villano March 30, 2018 at 2:07 pm

    I haven't truly had a period since I was about 13, I started at age 9. I also have severe endometriosis, I was supposed to have a full hysterectomy back in 2012 but then I got diagnosed with my gastroparesis, so the surgery had to be postponed and I still have yet to get it done because everyone is afraid to operate on me, especially since I'm now living in a nursing home on hospice care? Hang in there, Jaquie xoxo

  • Reply Murray Bourbaki March 30, 2018 at 2:12 pm

    I just wanna say thank you so much for posting this. I’ve always wanted to ask and have been wondering for a while, but could never really muster up the courage. My period, or what I refer to as “Shark Week,” showed up in my life at age 10. At that time? Shark Week was 3-4 times a year, each lasting at least 20 days. It was like that up until age 12, when my chronic illnesses started showing themselves. Then it was once a year for a month, or none at all. The weird thing though, is that I would still have the awful awful cramping at least 3 times during that month; pain that I would have if I were on Shark Week. Now they’ve come back, and they’ve come back hard. It’s so incredibly frustrating. I’ll be on for 2 weeks, stuck in bed for a week with a heating pad and cold rag on my face. During Shark Week, my GI symptoms go haywire, POTS, fibro and EDS are horrendous, I’m severely anemic, and I only then have seizures. That prompted me to finally see a gynecologist. We decided on birth control (that was 3 months ago), and Shark Week has to start before I can first take it, but thanks to my lovely body, it hasn’t shown up yet.
    I’m only 16, and this all really frustrates me and makes me nervous, knowing that I don’t know what’s going on inside of my body; knowing I can’t control things and I’m not “normal.” You really help me Jaquie, and I would really love to meet you some day. Thank you for showing me that I’m not the only one and can reach out.

  • Reply Katy March 30, 2018 at 3:15 pm

    I've had five back surgeries and not able to do all the things I'd love to do, but there are times when hurting later on is well worth it. I like the fact that I can choose my own pain day…if that makes sense. If there's a day where I want to go to the zoo with my niece(4) or nephew(almost 9?) or even sometimes just having them over for the night is very tiring, but I will do anything for those kiddos…within reason.
    I love watching your vlogs. You are one tough cookie, even on days when you feel like you aren't. I'm not a crier when it comes to pain, so if I do cry, everyone knows its pretty bad. I lost a lot of friends bc I can't do all the things that I used to. There's days when someone invites me to do something and they catch me on a good day, I get so excited to go. Then, the day comes and I end up having to cancel bc the pain is really bad, they'll get mad. They don't understand what it's like to have chronic pain, and they think I'm not wanting to go in general. I always pretty much ask them if they think I'd rather be stuck at home in bed instead of being with out with them and having fun?! The other thing is that I have to figure out if there's enough seating so I can sit when needed, and if I need to leave early and I rode with one of them, how am I going to get home and how quickly!?! I can go from regular pain to holy crap I need to lie down and now within minutes. I never wish pain on anybody, but sometimes I'd like them to feel what I do so they'd actually be understanding.
    Changing subjects, I love Harlow!!! I wanted my dog, Mikey to be a service dog, but that's never going to happen. Everytime he sees his leash, he gets excited and cries so loudly that he sounds like he's being murdered!
    When Harlow and Orion are together, which one is the boss ?

  • Reply xirisx1988 March 30, 2018 at 3:43 pm

    Before birth control I was sick 1 or 2 days per period because of the cramps. Now with birth control I only need 1 or 2 ibuprofen and good to go.

  • Reply Katherine Brenner March 30, 2018 at 7:17 pm

    Jaquie where did you get the white headband from? So cute!

  • Reply Sieren Tokiio March 30, 2018 at 11:44 pm

    I havent been able to get up at all today, except for a shower…love you, your vlogs actually help me alot

  • Reply Diane Young March 31, 2018 at 12:35 am

    Everything you described about all your chronic illnesses being triggered after puberty is exactly what happened to me!
    and I used to get seizures everytime my period came

  • Reply Coping WithBehcets March 31, 2018 at 2:22 am

    I'm glad that you found a plan that works, and that you haven't had to deal with periods even if they aren't sure why they've stopped. I have endometriosis and horrific ovarian cysts, so we did continuous birth control for a while, but I needed VERY strong hormones to stop my periods. We would swap to lower doses, and I would bleed for weeks. Eventually, due to blood clot risks, I couldn't take estrogen containing birth control. I went off all birth control for a year, and it was definitely miserable, though the weren't as bad as they'd been previously. Unfortunately I never thought about how hormones would impact my chronic illness, and that's when I had a major uptick in disease flares and seizures. Now I have an IUD, and while the process of getting it was absolute torture (for me), I haven't had more than 2 periods in 3 years, and the first wasn't a true period. (I had a hemorrhage due to hormone imbalances from not eating enough.) The second one was super light, and was also related more to poor nutritional intake and vomiting.

  • Reply Genevieve Mount March 31, 2018 at 2:51 am

    Thank you!!! Great topic!!!

  • Reply KellyTawni March 31, 2018 at 3:53 am

    The cup analogy was SO GOOD. That was really helpful for me to understand chronic pain warriors a bit more!

  • Reply rach smith March 31, 2018 at 3:58 am

    I have stage 4 endometriosis, it’s the cause of my chronic pain. I don’t just get “period pain” when I’m on my period. It’s constant and makes daily life a real challenge. My last surgery I needed a kidney stent because the disease had damaged it so badly. They also found endometriosis in my lung. When I am on my period I have to wear adult diapers, I bleed so heavily that normal pads just can’t contain in. My pain management specialist is really quite amazing and we’re working with nerve blocks and some other treatments to help. People don’t talk about endometriosis as much as they should. It’s NOT just period pain!!!!!!

  • Reply rach smith March 31, 2018 at 4:01 am

    Let’s just agree as a society that sex between a husband and wife shouldn’t be anyone else’s business!! Please don’t ask people about their sex life.

  • Reply Xx_LunarWolf_xX March 31, 2018 at 4:53 am

    Oh my God I wonder this for the longest time

  • Reply Spaghetti _pasta March 31, 2018 at 5:55 am

    7:03 awww cute hippo! Tyanks you for all your videos and sharing your experiences with the world!???

  • Reply Dear Alexander Hansen March 31, 2018 at 8:17 am

    To any (other) chronically ill trans people watching this video: If you get your period that doesn't make your identity any less valid. If you don't identify as a girl/woman and you get your period it doesn't mean you are a girl/woman. You are valid and you are loved ??

  • Reply Anna Donald March 31, 2018 at 9:57 am

    We are curious but most polite people wont ask. Thankyou for sharing this aspect of your journey

  • Reply Cathy Cordle March 31, 2018 at 4:15 pm

    I can't imagine asking anyone about their sex life. Just me, I guess. ?

  • Reply Tiki Stanford March 31, 2018 at 4:52 pm

    I’ve been living with chronic pain for about five years. I stopped having periods about six months in. At first I thought it was menopause, but no such luck. For over three blissful years, no periods. It was great. My doctor did a vaginal ultrasound maybe two years ago, and everything looked fine. I mean not fine, she said my ovaries were mostly bare, so periods. But also no build up tissue that could become cancer. The diagnosis was dysmenorrhea due to stress. About a year ago my period came roaring back. I was warned the period pain could be even worse than before, and it is. I’m handling it as best I can, but they do add to the pain I’m already dealing with.

  • Reply 14Raine14 March 31, 2018 at 5:42 pm

    Go Jackie!! A hard topic for some. It so important to talk about anyway!! I have hip dysplasia in conjunctipn with my CMT and OPMD, and my periods can be tough, particularly in the fall and spring when the weather changes. Hip pain plus cramps are yuckie. My hands also suuuuck and dealing with hygiene products, I have found a menstrual cup to be awesome! Much less cramping, which is a bonus! But the best thing is the frequency of changing/cleaning! No more frequent trips to the washroom just for hygiene products 🙂

    Keep your chin up Jackie <3 SD Trinket and I are cheering you ob

  • Reply Takiya Talbert March 31, 2018 at 6:00 pm

    How do i get rid of epilepsy. Need to help a sister out.??

  • Reply Sophie Sonnenleiter April 1, 2018 at 5:09 am

    You are such a positive influence Jaquie. I suffer from chronic illness as well and it's SO IMPORTANT to be grateful for the things you accomplished in a day, even if they were small. Love you!!!

  • Reply Jessica Gore April 1, 2018 at 1:21 pm

    Continuous BC is what saved me from endometriosis and ovarian cysts! Now my chronic illnesses don’t suffer more during it.

  • Reply Finney Hamster April 1, 2018 at 1:39 pm

    Thank you for talking about this! I have epilepsy and have seizures. My period has started becoming a very big issue, and it is triggering me to have ALOT of seizures before and during it. I’m not sure what to do, and am trying to find a solution

  • Reply jennifer Stewart April 1, 2018 at 3:20 pm

    Instead of adoption. You can do surrogate. Have someone have your baby with you guys dna

  • Reply Laura Shortt April 2, 2018 at 7:22 am

    Omg I'm soooo loving my hysterectomy I got, lol on my 28th bday! Due to a ginormous blood clot, I was forced to go off my BCP's, which were suppressing the Endometriosis, I never knew I had (until surgery to tie my tubes, like 4 months prior to my uterus removal (still have ovaries for hormones). However, going off BCPs caused hella heavy flow coupled w/ horrendous cramping, again (I was on them for 10 years). The blood clot was found sure to excessive pain in my right side & back, in March 2010, which I'm still suffering from, chronic pain due to… speculation by doctors, but umm, "nerve damage." Anyway!!!! So period pain &&&& chronic abdomen/spine pain + fact I've never wanted kids & wanted to be sterilized, even when I was a little kid = partial hysterectomy.

    Best decision & yeah…..I have a high tolerance for pain, because I'm in it all day everyday, for the last 8 years, so any ADDITIONAL pain, like you said, is like, I CANNOT, pleeeeeeaaaasseeeeee make it stop!

    I'm on fucking FIRE, right now, as I type this. Umm, from 6pm to now, 1222am, I've taken 310mg worth of Morphine (ER + IR's) &…..still burning

  • Reply Dannielle Lee April 3, 2018 at 6:52 pm

    People need to worry about their own sex lives lol

  • Reply Poisonous Paul April 4, 2018 at 9:59 am

    i am guy why i am here?

  • Reply Kate B April 4, 2018 at 8:38 pm

    ugh. I’ve allowed chronic pain issues to push my annual gyny exam to the back burner. why in the worth do I do this?! so terrible. blah. watching this video it literally just flooded back to the forefront of my brain. get with it girl, cmon. I need to just make the appointment already. ??

  • Reply Kayla Marie April 6, 2018 at 11:47 am

    Do you ever smile?

  • Reply Yang studios April 6, 2018 at 3:32 pm

    I've been having period problems since when I first started them, all my periods have been horrible, it's a medical problem that can't be fixed but I handle it the best I can.

  • Reply Abigail Tucker April 6, 2018 at 11:48 pm

    I'm a new to your channel and I feel you are a very strong woman for dealing with all this. I have watched your video on all your illnesses and saw your feeding tube went bad I was wondering why they don't use your port of tpn (total parental nutrition)

  • Reply Vanessa Blanchard April 8, 2018 at 4:44 am

    I understand why people are curious about your sex life. I know someone with a lot of autoimmune disorders and she wonders how other people manage relationships. Sex should be considered taboo, however you have every right to keep that private. Just know many of your viewers would be mature and support you should you ever decide to discuss it. I hope people don't bother you too much about it, it's a normal choice not to discuss it.

  • Reply Chronically Spoon Spent April 8, 2018 at 12:55 pm

    It’s so relieving to hear that you have difficult periods but are cleared gyno-wise! I have an IUD to control my horrible periods (which had my gyno suspecting endometriosis or cysts until they did an investigative laparoscopy and found nothing). My geneticist said hEDS warriors often have period troubles due to uterine tissue laxity which was very validating! I was always so worried they’d missed something.

    Thank you so much for talking about this. It’s such a relief to know that you also struggle with unbearable periods while being gyno-cleared!

  • Reply Amelie Says Hola April 9, 2018 at 3:26 am

    If you are underweight (and you have mentioned you have trouble keeping weight on since you can’t physically eat much) that could be why you are not menstruating. I know you aren’t anorexic but women with EDs who lose a dangerous amount of weight tend to stop menstruating. But again I know you have a lot of chronic issues and I’m not familiar with all of them so it could be something else.

  • Reply Livin' The Life April 9, 2018 at 5:41 am

    I have ibs, chronic migraines, low key eds, and kidney damage and periods make my pain SO much worse. You're lucky you don't have them anymore

  • Reply Lily April 10, 2018 at 4:31 am

    I have epilepsy as well and when I have my period my seizures get more frequent as well! Luckily I am also seizure free for a couple months now. You are so awesome and strong i'm praying for you every day <3

  • Reply Vera Waters April 11, 2018 at 5:44 am

    Menstruation and EDS/disabilities is madness. I have a really hard time with tampons/pads as I’m in a wheelchair because of frequent hip dislocations. Using a chair in the bathroom helps decrease damage and further dislocations while actually “inserting” (TMI!). I’ve had many a time where I’ve gotten stuck on the floor with dislocated hips needed relocation from another person, with nothing stopping the flow on the floor.
    That teamed with progestrone making joint laxity worse (Fine in normal people, terrible in EDSers. I can’t even open the fridge or pick up cups without dislocation shoulders and fingers, not to mention my hips with doing anything. Two weeks of the months 10x more bendy than usual).
    I can’t take birth control to stop it as they all contain progestrone and my dr doesn’t want to risk causing more damage.
    Not the best two weeks of the month lol.

  • Reply Avery Johnston April 12, 2018 at 2:43 am

    Seizures are really bad they are very hard to fight. I don’t have it. My best friend has it and i was her assistant so i know a lot.

  • Reply Jennifer Berry April 20, 2018 at 2:55 am

    Periods suck omg also you may have stopped getting them from the malnourishment and being under weight. I have endo and woah the pain you describe sounds a lot like it I’m glad you have been cleared.

  • Reply Jennifer Berry April 20, 2018 at 2:56 am

    I hope by cleared that you have had a lap surgery that is the only way to rule out endo

  • Reply Mandy Reynolds April 20, 2018 at 6:41 am

    Thank you so much for this, it was so helpful. Lol at your end of vlog ramble – 100% relatable xxx

  • Reply valley girl April 28, 2018 at 1:03 am

    I started my period on the bareback of my uncle's white horse as I was riding him. Talk about embarrassment lol . All my male cousins were standing around as my uncle noticed some blood on the horses back. He thought the horse had a tick. Finally he turns to me and says… I think you better go talk to your Mother. I was 14. I knew I was in for hell when that was how I was introduced to my shark week in that way. I also got kicked out of school because I simply couldn't go during that time. My Mom fixed that by telling the cute principal about my horrible periods! I thought I would die. I hope you feel better.

  • Reply Kitsune RedWolf May 2, 2018 at 8:12 am

    Cool socks make me happy to. They help me on a bad day

  • Reply Jessie37 May 2, 2018 at 7:05 pm

    FOR ANYONE CURIOUS ABOUT SEX LIFE AND ILLNESS, I WILL ANSWER THAT FOR YOU: First of all, its a very natural question, with very real life consequences. Its not always going to be sunshine and rainbows in a marriage anyway, but throw in a chronic illness and you're guaranteed to have some rough times. Its inevitable the longer you are married/ together. My husband and I have been together 21 years, married for 15 years. Having a heart condition and other illnesses takes a toll on our marriage, as illness naturally does. You always want to try and keep that spark alive as best you can. But there ARE times your body just cannot deal with sex…of any kind. Between pain, or vaginal dryness, to nausea and GI issues, it can be hell. It most DEFINITELY impacts your sex life and anyone who says it doesnt is not being truthful. But NOT always. There are ways around the difficult times, and other creative ways to be intimate with your partner. I can go on and on about this, but bottom line is its normal to worry if your sex life will be affected by illness. And theres nothing to be ashamed of or to feel bad about. God bless!!

  • Reply Lion King May 4, 2018 at 5:09 am

    What illnesses do you have?

  • Reply PianoDiva24 May 4, 2018 at 5:35 pm

    That’s so nosy that people are asking about your sex life! Like wth that’s private why would people want to know about that?

  • Reply AlwaysOutOfTime May 9, 2018 at 11:19 am

    These socks are really cool 😀

  • Reply An Aspie's POV May 15, 2018 at 3:49 pm

    i've been on continuous now for about 10 years. helps a lot since i used to end up in the hospital once a month on iv morphine and compazine.

  • Reply Elise Christine May 18, 2018 at 2:23 pm

    Hey Jacquie!, I know with a lot of chronic Illness puberty puts a strain on it (such as mine going out of control for the two years leading up to my first period) but your first period is the sign that you are reaching the end of puberty , not starting puberty…so why didn’t your symptoms start until a year after that if puberty was the driving factor ?

  • Reply snowyconfession May 23, 2018 at 12:52 pm

    I have faith that your period will be back to you when your body feels better. When I was sick and had periods at the same time, I always know if my sickness needs a doctor or not. Because, if my sickness is something serious and needs antibiotics or more serious treatments, my period will stop. Yes. It just stop flowing, completely. And when my body gets better (i.e. I had some high fever and then the fever get down), then my period starts again. I just think that's how my body made self defense so it can get better faster.

  • Reply Kimberly Wiggin May 24, 2018 at 9:36 pm

    I would miss a week of school I totally understand. About the period

  • Reply keelan James June 7, 2018 at 9:20 pm

    Who is a male here?

  • Reply Chickens Empire June 14, 2018 at 3:01 am

    Your so super pretty jaquie

  • Reply Kinzii shaw June 15, 2018 at 3:42 pm

    Where is that backpack from??

  • Reply Beverly Johnson June 17, 2018 at 1:59 am

    How many diseases do you have? I have never heard of anyone who had so many different diagnoses. You are remarkable.

  • Reply Lolly Gee June 17, 2018 at 8:02 pm

    My goodness your very strong! I’m older than you and my health is no better. But wow your amazing! You deserve your privacy and everyone should understand that. I went through years of terrible cycles each month. Btw I do not miss them at all. It’s one less thing I have to deal with. But bless you and I pray your out of the hospital and feeling better (((HUGS)))????????♥️?

  • Reply Chuck Ashcraft 0404 June 29, 2018 at 10:42 am

    I’m tired too I have not slept at all because I’m in jail for munder

  • Reply Des772 July 3, 2018 at 7:42 am

    Aw man. I have diabetes, gastroparesis and fibroids

  • Reply Rae Robbins July 4, 2018 at 2:45 am

    I'm so glad continuous birth control works for you, it made me bleed for over a month straight before concluding it wasn't going to work for me. Birth control in general also heavily messes with my mood. Lupron helped but had awful side effects and you can't stay on it anyway. I've had two laps for my stage 4 endo which have helped a bit but it's still painful as hell. Currently trying a progesterone based hormone treatment and seeing if helps, but endo with EDS and fibro is a nasty combination and I wouldn't wish it on anyone.

  • Reply nicki p July 7, 2018 at 12:24 pm

    Yea i have hormone and period problems and upped symptoms with my illness

  • Reply Kristyn Decker July 8, 2018 at 5:44 am

    I had bad periods too and they flared my epilepsy so I went on the depo shot and that seemed to help along with different medication I am seizure free for 6 years so far so good

  • Reply likeabunnie July 8, 2018 at 11:03 pm

    YES COOL SOCKS AND NEW SHORTS!!! it totally can make everything else better sometimes haha… It's the little things 🙂

  • Reply Chloe Ewing August 8, 2018 at 10:44 am

    Endometriosis is part of my chronic illnesses, which has so much more extra pain especially when I have a period! ❤️

  • Reply Amanda D September 19, 2018 at 5:30 am

    I have PCOS . my periods are painful when I get them.

  • Reply Phoenix Hart September 21, 2018 at 12:40 am

    Hey sweetie, have you tried CBD oil? It will help with pain and nausea

  • Reply Frank van Heerden September 26, 2018 at 6:35 pm

    Sorry I just joined you're endurance is inspiring. Can I ask what is your main diagnosis? Or is it a couple together

  • Reply InuYasha foxfire October 22, 2018 at 9:02 am

    I don't know if it's my place to say this but I just felt like I had too. Not everyone who goes through a period is female. Honestly I don't really get to upset when people call me female but I know some people do. I love your videos and I do not wish to seem aggressive or like I'm attacking you but I'm just a big advocate for LGBTQ+ people. Once again I love your videos and don't mean to seem aggressive. I did find this video very informative, thank you for making this video even though it's a personal topic to talk about.

    -a transmasc who loves your channel

  • Reply Joanne Baskett November 7, 2018 at 3:01 am

    Your period can stop with malnutrition from Gastroparesis.. ?

  • Reply Baylee Hoffmeister November 14, 2018 at 1:23 am

    Is you’re bed to comfortable?
    #ilovesocks
    Do you still wear pads even though you aren’t on you’re period.

  • Reply Satans Kush December 11, 2018 at 3:45 pm

    My periods get so bad that taking pills on top of a heating pad trying to relax with massages at doesn't work. And I have body and joint problems enough. When my period comes I have 10x worse body pains with my period pain. Sometimes I just go into a ball and can't move

  • Reply Kylie Kalvelage December 24, 2018 at 1:42 am

    ???????????????‍♂️?‍♀️????MERRY XMAS

  • Reply Martha Lipscomb December 28, 2018 at 8:08 am

    I had very painful period.

  • Reply michelle schafer 7 January 24, 2019 at 6:47 pm

    i have Chronic Illness to nd i hate my pms i have a lot of back pain everyday

  • Reply Debbie Ebbiebobebbie January 26, 2019 at 12:49 am

    Would love to hear how other chronic illness & chronic pain warriors handle sex. Specifically tips, positions, mobility aids, wedge pillows… what helps, what works, what should be avoided, etc.
    I understand y’all want to stay private but maybe a general discussion? #BuildALadder

  • Reply Savannah Kennedy February 25, 2019 at 3:19 pm

    Please contact me about who this surgeon is i am in a desperate situation and afraid of death. I am bedridden and very ill for about a month and i am starting to pass out and hallucinate. I been to the er many times, They refuse to do surgery because i am young. I dont eat and because of that i pass out, if i eat i throw up. I am bleeding from my rectal. I am looking for anyone that can help me. I have exausted all other resources and am willing to travel elsewhere in the country to get this done because my symptoms are debilitating and i am very afraid to die. I recently just started a fever. I jave not made a stool movement in a month and a half. My insides feel like they are burning i am crying 24 hours a day in excruciating pain. Please call me 8608499039. I am getting a lawyer to see if i can get someone to advocate for me. I am 22. If anyone on this earth can help me i would owe them my entire life. I have lost my job, my apartment my child has been woth a family member because i am bed ridden. Like i said i have tried everything and every laxative, stimulants, enemas, sepository. I drink 20 bottles of water daily and thats the reason nobody is giving me help because even though ive past out because i cant eat…. i can still drink water. I am petrified and so desperate. This has destroyed my life, LIke i said begging for someone to hear my story and help me. I have also alot of cronic illness at a young age but this is unmanageable and something needs to be done. I am extremely embarrassed explaining this on YouTube videos out of desperation. Please contact me some information about your doctors so that i can try to expand my search to see if anyone will help. I have seen Er doctors and my gastrointestinal is not for 2 months and im genuinely scared for my life at this point. I know this sounds ridiculous but like i said i scream in pain most of the hours of days besides when i sleep and have contemplated suicide just to end this fucking pain.

  • Reply selkirk rex April 11, 2019 at 2:41 am

    Have we thought about freezing your eggs and use surrogate Its a incredible personal decision that nobody can make for you and Judd

  • Reply Summer April 16, 2019 at 4:06 pm

    I can’t believer people ask you about pregnancy and your sex life.
    It’s your business and no one else. It’s very intrusive.

  • Reply Justb Ambitious September 22, 2019 at 11:41 pm

    Thanks for the video very informative

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