Articles, Blog

Living Rural w/ a Disability/ Chronic Illness [CC] // aGirlWithLyme

March 9, 2020

[Intro Music. Vincent Tone – New Summits] Hey guys! In today’s video, I am going to talk about
what its like to have a Chronic Illness or Disability in a rural community. I think there are many stark differences between
living in a city and living someplace rural when you have a Chronic Illness or a Disability. So before we get into the video, please be
sure to give this video a thumbs up if you liked it, subscribe if you’re new, and please
be sure to check me out on Twitter and Instagram – all my social media links will be in the
description below. So let’s start with the obvious – health services. When you live rural doctors and hospitals
are farther away. For me, it takes about 20 minutes of driving
to get to the closest hospital and it takes about 45 minutes to get to the next biggest
major hospital in my province. Wait times are really long. It can take two weeks to get in to see your
family doctor, and sitting in the ER waiting room for more than 8 hours is quite common. Often hospitals are understaffed and overcrowded,
and they are sorely lacking many services to help patients. It can take months to get an MRI and years
to get certain surgeries done. It can take more than 6 months to see a specialist
and often some specialists are not in your immediate area so you have to travel to the
city, and sometimes you may even have to travel out of province. This is again usually because the province
or the city or the town that your living in is quite underfunded, underpopulated, the
population doesn’t support some of the specialists that many people would have to go see. And as you can imagine with the lack of funding,
there’s also a lack of treatment. So if you have a rare disease or a complex
disease – then usually you either have to travel long distances to see a specialist
or you have to travel out of province and sometimes that can be out of your own pocket,
which can put a lot of financial strain on the individual. And some who are unable to travel or unable
to afford certain treatment will simply not get treated and go untreated. So there are certain treatments and specialist
that can be quite inaccessible to many. Like I said some may not have the funds or
the means to travel farther away to get care leaving them without treatment options that
could possibly improve their quality of life or lead to a diagnosis. Next, we will talk about accessibility. Living in a rural community has its many drawbacks
when you are disabled. Oftentimes local establishments like the bank,
the post office, the convenience store, arent always wheelchair accessible, or easy to get
to. So there can end up being many establishments
like the grocery store, and restaurants that are inaccessible to the disabled. Things are also farther away and if you don’t
have the ability to drive, or you can’t drive for long periods of time or you need someone
else to drive you – then things can become pretty inaccessible to you. Oftentimes there are not taxis in rural areas,
there very rarely is certain bus services and different modes of transportation, and
even if there is oftentimes cabs won’t accept wheelchair users. Delivery services are limited as well. You can’t have your groceries or your take
out simply delivered to you. And often you have to pay extra shipping when
ordering online because you’re in a more remote area and not in a city. Some of us are only able to go grocery shopping
once a month, and as you can imagine fruit and veggies do not stay fresh for that long. And often this can be so much harder in the
winter. Sometimes snow removal can take up to days
to happen when you live rural, and the conditions on the road often times are bad and dangerous,
and if you have a Disability you don’t want to risk the chance that you feel awful and
not be able to drive yourself home with bad road conditions. So because we have a lot of snow storms we
end up missing quite a lot of appointments, we will prolong going to the grocery store,
and sometimes we will prolong getting medication because we can’t make it to the pharmacy. When considering fun activities to do it can
be quite tricky to find a place that is completely 100% wheelchairs friendly and accessible,
so sometimes parks, museums, and even hotels are not 100% wheelchair accessible and that
can really make it hard to figure out where to go and what to do, when you do wanna do
something.As many people know when you live in a small community you pretty much know
everyone and everyone pretty much knows everything about you, and what’s going on. People love to talk. When I was younger and I first got sick I
had some pretty nasty rumors spread around about me. I had people I didn’t even know talking about
me, and obviously, that was never a fun feeling. And I feel like when you’re living in a small
town often you come across people who are very small minded. I lost a lot of friends when I became sick,
and part of that is due to me just becoming sick, and people not understanding that I
was sick, and people just didn’t talk to me anymore, and people didn’t bother to call
me, and because I do live rural and most of my other friends did -it would not be as easy
as just walking out of the house and going down the street and visiting your friend who’s
sick. So oftentimes we were miles away. And because you live in a small community
oftentimes when you go grocery shopping or just to the local convenience store, the bank,
or the post office, you end up running into friends or I guess former friends, and that
was also pretty awkward at times. And most of the friends that I did have we
eventually drifted apart and went our own ways. As you can gather from this video, it is quite
hard to live in a rural community when you have a Chronic Illness and a Disability. I think many of us who do, face unique challenges
that those who live in a city wouldn’t otherwise face. I hope you guys enjoyed today’s video. In the comments below I want to know where
you guys are located at. I’m am located in Nova Scotia, Canada. Please be sure to give this video a thumbs
up, subscribe if you’re new. Please be sure to hit the notification button
down below to get notified when i upload new videos, all my social media links will be
in the description below, and I hope to see you guys next time , bye! [Outro Music. Vincent Tone – New Summits]


  • Reply Whit January 24, 2018 at 7:11 am

    Fantastic video!

  • Reply Fishing with Jesus January 24, 2018 at 1:31 pm

    ThomasHardenFishing sent me over. Wow, very many challenges to overcome. I never thought how hard it is. I just want to say a prayer for you. Father God in Heaven I lift up people to you who have a Disability and/or Chronic illness and live in a rural area. I ask that you help ease the many burdens of living in a Rural area. I ask that you heal aGirlWithLyme and give her peace that only comes from you Lord. In the name of Christ Jesus amen.

  • Reply IsThatBrandon January 24, 2018 at 7:35 pm

    Love this! What an inspirational video! ❤️❤️

  • Reply Lily Betancourt January 26, 2018 at 12:15 am

    I love how inspiring and educational your channel is! I just subscribed and would love it if you could support and check out my channel as well 🙂

  • Reply Marklar Plays January 29, 2018 at 11:01 pm

    Great video and well edited! LA here!
    Sub back if you like. Thanks!

  • Reply J. M October 12, 2018 at 6:40 pm

    I hope things get better for you and maybe what your doing will help someone,,yea holidays suck,,,I always tell everyone I'm going to the others house and try to sleep alot….

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