Articles, Blog

Grace’s Story: When strep triggers OCD, mood swings and behavioral changes

November 5, 2019


come on lock the door did you lock the
door what is PANDAS? PANDAS is where you get OCD and start organizing like she was getting these fevers and she’d
get a fever and she’d be really really sick but as soon as she was done being
sick and the fever would be gone her behavior would be atrocious my name
is Grace and I’m 8 years old and I love to play with my parents
she um she’s a people person um a chatterbox
loves to be the center of attention even as early as six months you could
tell she had a sense of humor she didn’t have lupus or rheumatoid
arthritis she didn’t have Bartonella she didn’t have Lyme she didn’t have cat
scratch fever you know well maybe she’s allergic to the pets so we got rid of
some pets maybe there’s mold in the house we tore out our carpets
she missed I think I counted 55, 57 days of kindergarten and she’s
got a couple friends but it is difficult for her in that area I got suspended
because I wouldn’t let a child get off the bus I didn’t want anyone to sit by
me and I didn’t want anyone going anywhere I just felt that way the
doctors we were seeing were trying the best they could but they couldn’t find
an answer the test results weren’t showing answers we just kept on
searching we get her in we do the blood work get
an appointment get in sit down with the immunologist all this stuff she thought
it could be nothing except for she ordered an ASO titer which is a strep
titer the only thing that has any reading and it’s really high I mean
it’s ridiculous high and she goes you know she didn’t have any
behavior issues does she they’re like um yeah she does she said the only thing I think
that it might be as PANDAS she said let’s order the Cunningham Panel I’ll never forget when we got the email
that had the results of the Cunningham Panel you know yes this means this is
what she has you know we have but we finally know what she has
we could stop searching once we started the new med it
changed and helped me and I love it I’m getting better a lot more happy days
a lot more good days than there are bad days now if she does get sick and we’re
able to to work with her providers make whatever adjustments are needed I wish
that the people that have PANDAS like me get better we’ve got the tools let’s use
them

14 Comments

  • Reply Free Music February 28, 2018 at 2:05 pm

    Thanks for the Video! Forgive me for chiming in, I am interested in your initial thoughts. Have you researched – Trentvorty Kids Science Theorem (probably on Google)? It is a smashing exclusive product for becoming an excellent parent minus the normal expense. Ive heard some pretty good things about it and my cooworker after many years got astronomical success with it.

  • Reply jamie thomas May 8, 2018 at 4:05 am

    My daughter is 7 with pans- ty for your honest video

  • Reply k. m. July 29, 2018 at 9:57 am

    Can't even imagine how many children are misdiagnosed with mental illness when in fact they have PANDAS. All those wrong medications they're on. Wrecking havoc in their little systems.

  • Reply tukedmj July 29, 2018 at 6:39 pm

    Wow doctors suck. You spent all that money and they weren’t able to diagnose your child

  • Reply GhoulishGal July 31, 2018 at 9:00 pm

    I didn’t realize this was a thing. My son was the “perfect” child and one day bam. He just started to act out and turn into,well, a little demon. And after watching lots of these videos he did have strep throat before all this started to happen.

  • Reply Zay Say September 6, 2018 at 5:19 am

    My son has strep A right now

  • Reply kate fevre October 17, 2018 at 7:00 am

    Grace is a beautiful little girl and I wish her all the best

  • Reply Allison the llama November 10, 2018 at 6:13 am

    I got pans when I was 7 it was hell I used to be so happy but then that all changed I'm now older and I can tell you it gets better it may not be now but it will

  • Reply Kennedy Mabrey February 3, 2019 at 3:00 am

    I must have this because I've been getting mad at my brother and mom for completely nothing randomly in the middle of nowhere

  • Reply SmorgasHoard June 11, 2019 at 5:20 am

    CBS has all of the information on this disease and they won't release it good job liberal CBS

  • Reply Till Man August 25, 2019 at 12:54 am

    My cousin had to go to like 10 pediatricians before one of them knew about PANDAS and sure enough that was it!

  • Reply K J September 9, 2019 at 7:53 am

    Grace is awesome! Hope she's getting better now

  • Reply Donnella Buxton October 6, 2019 at 3:23 pm

    May be vaccines have damager her. Not only does vaccines have also sort toxic and brain damaging neurotoxin in them, Scientist in Italy are studying what really in a vaccines and they have found in one vaccine that they have tested has over 300 bacterium in it. This is just so scary and to make matters worst it they are now manufacturing a lot of vaccines in China and India. The rates of children health has declined with the rising rates of vaccines. 1 – 4 children with a neurological illness or Seizures, Autism, ADHD brain cancer etc., I'll also a new learner about PANDAS and I wish I new about this years ago when my children were having issues. I will still have them tested. Also look into Protandim to be used after this treatment.

  • Reply kristin F October 7, 2019 at 10:42 pm

    Do you want to come to my house for panbas awareness day my kids has panbas
    To

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