Articles, Blog


December 22, 2019

It’s kind of a rough morning. We are getting ready to go to the hospital. I have no clue how to feel about it. Thankfully she did not pass out. ♬ Don’t you think we’re better together ♬ ♬ Oh Honey ♬ ♬ I think we are ♬ Good morning guys. It is April 2nd 2018, the day after Easter and… it’s snowing. It’s kind of beautiful. I was so shocked. It’s kind of a rough morning. We are getting ready to go to the hospital. Mary’s doing her vest and mists right now, getting her lungs… Trying to get her lungs ready for the day, it’s been a hard morning of coughing and throwing up and coughing and coughing and coughing. So we are going to go do some tests at the hospital, and we’ll bring you guys along, but first Ollie has no idea, well, did you look out the window? Did you look out the window? Do you have any idea what we’re gonna go see outside? Come on. Let’s go check out the snow. [Peter] Look! [Peter] You love the snow! [Peter] Look at the flowers in the snow! That’s so sad. Okay. [Peter] Go run! [Peter] Make some yellow snow! Good boy. [Peter] All right. We just got here, not to worry. I just took my seat belt off. [Peter laughing] [Peter] We are pulling up to the hospital and how you feeling about this? I have no clue how to feel about it. [Peter] I told ’em about your morning. That didn’t go out well. I mean, came out. [Peter chuckles] [Peter] But all right we’re gonna get in there, and we’ll bring you along. Here we go. Okay, so yes, we are here and we are gonna do PFTs, pulmonary function tests. See how my lungs are doing and do you wanna… No, it’s not, you can have it. Do you wanna swing that door shut? So, we’ll do pulmonary function test, blood work. I’m not sure if we’re doing a chest x-ray. And we’re also gonna leave a sputum sample. That’s like the mucus that I cough up. So it’s whatever’s in my lungs and that the lab will test and see what my lungs are fighting right now, like what bacteria is in my lungs so that can help inform our treatment plan. This morning when I woke up I was like yeah, it’s a good… it’s a good thing we decided to come in earlier than… Yeah, that’s what I was thinking. Really? Yeah, I was because I woke up to Mary like coughing really hard and I was like, okay, yeah, this is what we need to do today. So I got the vlog edited, the Monday video edited this morning, and now I just need to upload which is what I’m doing right now. Good job. 48 seconds left. Nice. Thank you hospital with good internet. Yeah, seriously. We’ve been in some hospitals that don’t even… have internet. Yeah. I was inpatient at a hospital that didn’t have internet… but I heard rumors that they were gonna get internet. Do you remember how many gigabytes or whatever of cell data we busted through? We would do like… [Mary snorts] I don’t know… A lot. Several a day. Yeah. ♬ chill jazz music ♬ [coughing] All right, PFTs are, it felt very different like… Sometimes when I’m doing the test it can feel like easier than other times and other times it’s more like ah! And it was more like ah! That kind, but numbers are stable, down slightly but in the same range, so that’s awesome. [Peter] Yeah. That gives us some time to think about a plan of action. We still need to speak with the hematologist or speak with my doctor who spoke with the hematologists about what are my options as far as with my bone marrow. So my bone marrow takes a hit when I’m on certain antibiotics and I don’t have a lot of options as far as antibiotics go so if it means that I have to be on antibiotics that… my bone marrow doesn’t like, how do we deal with that? Etc etc, so this stability as far as my lung function goes, and lung function isn’t everything, but we do take this as a we’re very thankful for that stability so that it gives us time to think and figure things out or try to figure things out. [Peter] All right. We just got to the blood draw lab. [Peter] They did do a swab in Mary’s nose for…to test to see if it’s flu, but… My nurse was like, try not to hit me. [Peter chuckles] Okay. She’s like, I have to stick this up your nose and swab for 10 seconds. Okay, so she’s stuck it up there and it was like oh oh! And I… [Peter] Mary like grabbed her arm. I just like held it. I was like, thanks for lending your wrist. She was like, thanks for not hitting me. Takes teamwork. [Peter] Yeah. Oh, hey Dora. Hey Ollie. [Peter] Look, There’s actually a window. [Mary] Can I have some sandpaper? [Peter] Sandpaper tissue. Thank you. When it’s chilly outside you can use the window as a… ice pack for your… broken blood vessel. We just finished at the lab, and let’s just say it didn’t go so good. The person who was gonna take it… came in and was like oh, I’ve never drawn blood from hands before. And they always draw my blood down here, so she brought another person in with her, but that girl still tried. I mean, everybody has to try for the first time. When she put it in I was like, oh good. She got it, like, that felt normal. That felt fine, but then it started not feeling fine, and then it really felt bad like something just weird, I don’t know. It kind of felt like she hit like… a nerve or something. I have no idea. Then it kind of felt like that time when they placed an IV, and I passed out. Thankfully she did not pass out. No, I was fine, but I was like ah, I don’t know, doesn’t feel right, doesn’t feel right, and then like… I started breathing funny. I think I was just like, it just didn’t feel right, so… They were able to get the rest of the blood but… it just didn’t go as well as it usually does. So an ice pack feels kind of good. Just a little window icepack action. There’s a CF hack for you, or a blood lab hack. On your way home just ride with your arm on the…hand on the window. And I guess if it’s the summer it’ll act as a heat pack. So we are done at the hospital for now. Waiting to hear results from the lab and from the… flu swab. Let’s go home. Oh giant, baby head [Mary] Giant baby head. [Mary] The day started with snow and ends with sun. We’re both a little tired out. Peter’s feeling like kind of sick again. I… I feel like it’s not so much sickness as it is just like crashing from pushing through this past week. So I’m just like feeling exhausted. Makes total sense. Tell ’em about that cartoon. I just saw this little cartoon on Facebook that was like Pastor on Sunday morning. On Easter morning. On Easter morning, he has risen! Pastor on Easter afternoon, he is dead. Meaning the pastor’s dead. Pastor joke! Yes. Like the reality of the pressure and the planning and the adrenaline that a pastor exerts on Easter week equals dead pastors in the afternoons of Easter so. Just exhausted, yeah. And then of course within 24 hours of that, driving to Boston. Yeah. And all of that, so. Anyway, we are gonna keep on… resting. [Mary] Well, hi there. And hi there to you guys. I do have a curtain to hang in front of this closet, and I look forward to doing that so that I don’t see all the stuff in our closet anymore. I’m not exactly sure why or when? but apparently I threw my back out, or… Maybe it was throwing up this morning? Or it could have been coughing after PFTs. I feel like… But your back was hurting before PFTs. Oh Oh really? Yeah. That’s funny. I thought it was PFTs this whole time. Okay. So yeah, maybe it was throwing up. Huh. Or coughing or something. But it’s like I can’t sit up straight, and it’s like, or like, can’t stand up straight and… I think you need a massage. Really? Yeah! That would be awesome. All right guys, well… Thanks for coming to the hospital. Always an adventure around here. We’ll keep you updated if I tested positive for the flu whenever we find out. I’ve never been, although one time I was swabbed when I was in the hospital because I had a fever, but I was like um it’s because I’m on IVs and they give me a fever, and they swabbed me anyway, and guess what? It was not positive! And but I don’t know. That felt, I think that was a different… I don’t know if that was like a viral swab. I don’t remember how that all worked out. I think I did it because I was like oh, what? You’re gonna put that where? I was like how about I do it? But this time I let her do it. Wow! Remember I had it done at the urgent care a couple years ago. I do remember that. Yeah. I forgot that it went up your nose. Mm-hmm. So it was that same thing. Same thing. Did you let her do it for ten seconds? I don’t remember 10 seconds. You didn’t hit her, did you? I did’t hit anybody. No. You didn’t. [both laughing] Well, guys, we are thankful for y’all and… What? You said y’all. Sometimes I channel my inner southern boy. All right. Well. Y’all… As always. See ya in the fall. [Peter laughing] [both] As always, we will see you tomorrow. Good night! ♬ And let’s end with bonesy boy. Hey Ollie, want to say good night to the peeps? [Peter talking as Ollie] Good night guys. I’m pretty cute. We’ll see you tomorrow. ♬♬


  • Reply The Frey Life April 3, 2018 at 6:47 pm

    I want to hear YOUR stories! Have you had the flu swab? Or what about the strep throat test? I’ve never had that… but i imagine it might be the the “chokie” what my sister and i called the CF sputum throat swab growing up. Tell me all your stories!

  • Reply 2listening1 April 3, 2018 at 10:40 pm

    HEY! I say "y'all" too! I even say "all y'all." 😉

  • Reply wolfsrule100 April 3, 2018 at 10:40 pm

    Sorry for the rough day!! I've had the flu swab a few times in my life and I always feel like their trying to fetch out my brain ?

  • Reply 65broskate April 3, 2018 at 10:41 pm

    Dang man I definitely know what that's like :/ I hope you feel better soon!

  • Reply bara moln April 3, 2018 at 10:43 pm

    I was confused about the baby ahead had to rewind it twice before I saw it this one big babyhead

  • Reply Laura VanCour April 3, 2018 at 10:57 pm

    Hi Mary in my area we have a young couple that the wife's husband has cf… He has had a lung transplant a year ago and has had the same bacteria grow back in new lungs. Like you antibiotics are hard to do so the wife started diffusing essential oils that she looked up or read about on that particular bacteria at night in their bedroom. On there next lung visit that bacteria had not been found in the lungs. Mind you she is not saying it was from the diffusing as they believe in prayer and faith but was excited as his bacteria has never been not found in his lungs… Just curious if you have tried diffusing oils or maybe consider doing so… May god bless you always!

  • Reply Trisha B April 3, 2018 at 10:58 pm

    I pinched a nerve in my back about a week ago and am still getting over it. I could barely walk and standing hurt so bad.

  • Reply Sa Rah April 3, 2018 at 11:04 pm

    Haha I was waiting for Mary to comment on the "y'all" 😀

  • Reply Kara Bowles April 3, 2018 at 11:18 pm

    I had my first blown vein yesterday for one of my routine tests. Thanks for being you.

  • Reply Trisha Burke April 3, 2018 at 11:26 pm

    I use to reward my kids with Starbucks anytime they had to have a flu or strep swab……

  • Reply momamy7 April 3, 2018 at 11:35 pm

    You both look like you need a day in bed 🙁 hope you guys are feeling better!

  • Reply Saskia April 3, 2018 at 11:48 pm


    That head tilt though ??

  • Reply FunsizedStyle April 3, 2018 at 11:53 pm

    Ollie's head tilt gets me every time! ♡

  • Reply Sonia S April 3, 2018 at 11:55 pm

    loled at the way he passed the sandpaper

  • Reply Fiona M April 4, 2018 at 12:04 am

    That's crazy that someone from Boston Children's hadn't drawn blood from the hand before. I only let people draw blood from my hand if they do it a lot because if they hit a nerve there it can paralyze your hand, that's what my phlebotomist warned me about!

  • Reply Diz Jake April 4, 2018 at 12:10 am

    I just hate when Mary has to struggle even more than normally does. It literally makes me tear up. I'm so sorry but you,my friend, are a rockstar!

  • Reply Shirley Plumer April 4, 2018 at 12:17 am

    Hugs loves

  • Reply Vickie M. April 4, 2018 at 12:20 am

    I pretend to give Ollie a kiss on his nose. You both need a very long bed rest. God bless you. I did get swabbed for strep years ago; positive of course. ❤

  • Reply cadlepartyof 7 April 4, 2018 at 12:25 am

    I've had strep and flu swab and it's really not that bad. I'm also a diabetic so maybe I'm just use to being poked??

  • Reply Leo Priest April 4, 2018 at 12:28 am

    the 2nd of April was my 20th birthday ? can I get some likes for that?? ?

  • Reply Leo Priest April 4, 2018 at 12:36 am

    can they not take blood from your port? I thought that's part of the reason you have them as well administering meds..

  • Reply Sonia McKellar April 4, 2018 at 12:47 am

    I had the quad flu shot last year but still got the flu. We found this out with a nasal.swab it was para influenza b and boy was I sick for like 6 weeks with the rest of the city. This year for our winter (your summer) they're apparently making a better flu shot.Get some rest guys ! Love sonia AUSTRALIA

  • Reply Kitty Mervine April 4, 2018 at 12:48 am

    I got my Frey Life sweat shirt and it's PERFECT. IT's so nice and comfortable and I got a big size so it's just right for everything.

  • Reply Betta Blue April 4, 2018 at 12:50 am

    From down here in GA….Love y’all!

  • Reply Mrs. PuppySaver For life April 4, 2018 at 12:51 am

    Sorry you had a rough day. I went to my endocrinologist today, and had blood work done. As usual they missed the vein the first time.

  • Reply Els G April 4, 2018 at 12:56 am

    When you stand at that breath measure thing (sorry, I don’t remember the lingo), you look like a singer in a recording studio hanging on to the microphone like a star. ?

  • Reply Jessica A April 4, 2018 at 1:01 am

    Once again, you guys are amazing !!

  • Reply Luella R April 4, 2018 at 1:02 am

    I think even Ollie has had enough snow!! I hope you both feel better soon!!

  • Reply Ana Larson April 4, 2018 at 1:17 am

    Yeah we're having the snow and cold in NY too. Happy Easter. Sorry been missing u guys but always in prayer. U all are awesome warriors. Blessings. Please for the love of God research iv vitamin c it maybe a friendlier form of antibiotic but watch out for synthetics.

  • Reply John Loughlin April 4, 2018 at 1:17 am

    I always end up blowing with you when you do PFTs on the vlog! – Holly

  • Reply Cynthia Johnson April 4, 2018 at 1:23 am

    You are a champ with your PFTs. Yay you! Up the nose flu swabs twice but had influenza and was so sick I did not even care. There's always a bright side…haha. Sandpaper. Window ice pack. You were so funny today because you were so RIGHT. I could go on but we all know how awesome you guys are. ??

  • Reply Meli J April 4, 2018 at 1:39 am

    Hi Mary! ?? Pfts sure dont get any easier even after all these years of doing them do they?! I had pfts yesterday and had a brain toot, i forgot to take the deep breath in after doing all the work to blow the air out! Haha Whew, the swabby sounds Rough! Glad you are done for now. You are a ??☄. Hugs!

  • Reply Pat Norton April 4, 2018 at 1:41 am

    Did Peter finally get health insurance?

  • Reply Stealth Trees April 4, 2018 at 1:47 am

    I love you guys ?

  • Reply Hannah Saunders April 4, 2018 at 1:49 am

    They almost always have to take blood through my hand because my veins roll. I’ve had to get pricked 6 times before at a blood lab.

  • Reply babybluex April 4, 2018 at 1:53 am

    Gosh it only took them one go to get blood! It always takes them at least 4 with me even though I always tell them to take it from my hand they never listen and go for my arm then they give up and go for my hand.

  • Reply Steph April 4, 2018 at 1:57 am

    I'm not sure what Peter had..
    But, my parents had the flu to the point of needing to be admitted to the hospital for one of my parents.
    I also contracted the flu not long after and there were days where I felt really bad..
    Although I think it I could have gotten better more quickly if I had taken care of myself totally.. But, I had exams, school, pets, etc.. Normal things you need to do..
    I'm also a vegetarian, so I'm not sure if that helped it not be as bad as what my parents had, or it made the recovery longer..
    Either way.. It did takes about a month for me to get over the flu, and then I had to deal with the not wanting to eat anything.. Which I heard happens a lot afterwards you don't want to eat anything..

  • Reply trude ross April 4, 2018 at 2:08 am

    How much do you pray and speak to God and let and then listen and let God tell you what you should be talking about lead you into what’s your preaching or do you do any of that

  • Reply trude ross April 4, 2018 at 2:09 am

    Oh and also I hate hospitals feel the passion I think they’re all trying to kill you but I’ve stopped taking my pills because I got tired of feeling like I was half dead now I feel a lot better

  • Reply R Pierce April 4, 2018 at 2:09 am

    Dog Nose! So cute.

  • Reply nichole alarie April 4, 2018 at 2:26 am

    Hey Mary, my name is Nichole I said hi to you at the hospital when you where coming off the elevator. It was very nice meeting you. I would love to talk further my email is [email protected]

  • Reply Salacious B Crumb April 4, 2018 at 2:39 am

    I had that happen with the vein/blood draw a few months ago. Girl just didn't get it…and then it started hurting wildly. I told her to take it out immediately so she did…and I passed right out. Woke up flat on my back with like 6 people standing over me. Weirdest experience.

  • Reply hearsthewater April 4, 2018 at 3:05 am

    Y'all should try Zeel, they come to your home to give you massages. I hear they are pretty good.

  • Reply Becky Hamilton April 4, 2018 at 3:27 am

    I cracked up when Mary asked for sandpaper and the tissue box didn’t want to let go of the “tissue “.

  • Reply Kara W April 4, 2018 at 3:31 am

    On the bright side, the original "chokie" had to be worse! Misbehave and Mrs. Trenchbull put you in a tiny closet with the sharp end of very long nails in the door… Not to mention shot put balls possibly hurtling your way!! Hopefully the nostalgia of this takes your mind off of everything, even just for a few minutes 🙂

  • Reply Deborah Hartman April 4, 2018 at 3:33 am

    Agree on the flu swab! I think they hit my brain!

  • Reply Nancy Seeley April 4, 2018 at 3:38 am

    I've been to the giant baby head museum and loved it. Take care and pray you both feel better soon.

  • Reply Kimberly Hayes April 4, 2018 at 3:41 am

    I had a strep test before my tonsils were removed. When I was a kid my tonsil were always inflamed, but sometimes they'd be full of infection that I'd use my tounge to push it out. It was horrible, but one year right before my daughter and I went in to have our tonsils removed I started running fever and my throat was killing me so they tested for strep, which I did not have thankfully. My daughters and my surgery commenced three days later…. I was 23…. Most painful surgery to date. 10 out of 10 do not recommend as an adult.

  • Reply Natasha K April 4, 2018 at 3:42 am

    Sorry y'all (lol!) have been having a rough time with things lately. Continuing to keep y'all in my thoughts and prayers. 😉 I have been having an extremely rough time as well with my poor health, medical conditions, being sick with a bad bug, chemo, and life. We continue on, do what we think we can't do, and live life to the fullest. Love and hugs to you guys from Neptune Beach, Florida!

  • Reply Sarah P April 4, 2018 at 3:44 am

    Hope you feel better!! I sent an email about the glass you broke the other day with a link to purchase more!

  • Reply OneDirectionFan354 April 4, 2018 at 4:06 am

    I hope you’re feeling better!! Monday wasn’t good for me either, I had surgery at 7:30 am which was not the best way to start the morning ??! Hopefully your labs and tests all come back with the best possible results and you get the news you want!! Feel better!

  • Reply Laura Piacentini April 4, 2018 at 4:22 am

    I hate the flu swab!!

  • Reply Jean Lee April 4, 2018 at 4:26 am

    my mom is 80 and she had the swab done for the flu test, and she almost clocked the nurse I had to grab moms hand…..glad no one got clocked……lol. xoxoxoxox hope the flu goes away and stays away.

  • Reply Louise Patty April 4, 2018 at 4:33 am

    How old are you ?

  • Reply kathleen beaman April 4, 2018 at 4:39 am

    I never realized it was your bone marrow causing the low platelets. I didn’t even know that you had a bone marrow test. Doesn’t that just hurt like crazy??!!
    Peter I watched your Easter service. Fabulous job, what a way to “bring it home”. You are so passionate about our Lord, His Resurrection and the eternal life we get to spend with him when we give our life’s to Jesus.
    I am so thankful for you and your passion for God.
    Love y’all, all three of you.

  • Reply LifeonPlants April 4, 2018 at 4:51 am

    Hugs and prayers from Canada!! You both have such a wonderful disposition which I find so inspiring! God bless you both, and Ollie too ?

  • Reply Ebony Marie April 4, 2018 at 5:05 am

    I am praying for both of you. I hope that both of you start to feeling better. Remember when you sleep you heal.

  • Reply Mary Walker April 4, 2018 at 5:11 am


  • Reply Kaalyn April 4, 2018 at 5:15 am

    Aah. I'm a chronic illness warrior too, and had just about everything done to me under the sun, but nothingggggg compares to the flu swab! I was so taken aback and felt like she was gonna hit my darn brain! And then she yelled DONT MOVE! …which I was trying so hard not to, but everything in my survival instincts just wanted to lean back and sneeze it out. It was totally involuntary. I felt like such a loser that it was so shocking to me when I've had no issues with some of the worst things done to me. But dang, that swab is noooo joke!

  • Reply Izzy Anderson April 4, 2018 at 6:22 am

    I'm catching up on the last couple videos I missed while I'm sitting out in our garage in front of the woodstove trying to stay awake while watching a sick calf. Your videos are awesome motivation! 😀 Thank you so much for sharing your lives with us through these vlogs!

  • Reply Robin Davis April 4, 2018 at 6:42 am

    Prayers for good outcomes. Never had a nasal swab. Had Strep test. As an MA, I had to do Strep tests. I felt so bad for the patients. I also drew blood at a hospital for a year. Hand draws were my specialty ?. Love Ollie boy. Loving my new Standard Poodle as well ??

  • Reply Loraine Stott April 4, 2018 at 7:50 am

    In the UK any time your admitted into hospital They do three swabs before taking you to the ward your going on. We have to have a swab of our groan area, one of the back of our throats n last but not least up our nose. They do it to test for mrsa. Xx sending you lots of love and prays from Sunderland in the North East of England xx loraine xx

  • Reply Rebekah Bridges-Tervydis April 4, 2018 at 8:11 am

    Ollie is so in tune with you Peter.

  • Reply Rebekah Bridges-Tervydis April 4, 2018 at 8:14 am

    Also, I love when Mary goes to do PFT’s. Mary. Looks like she is about to belt out a broadway tune . Awesome.

  • Reply MusikLyf April 4, 2018 at 10:14 am

    I was tested for the flu a few weeks ago (in Australia) & I swear the nasal swab was worse than the flu itself!!!

  • Reply TheBeccajb April 4, 2018 at 10:35 am

    Saying "Y'all" is the only way to go. LOL! How else would you say it?

  • Reply Brandy Archer April 4, 2018 at 1:13 pm

    Do you guys have a P.O. Box?

  • Reply Helmi Rh April 4, 2018 at 1:19 pm

    Hi im from Tunisia i have probem in my lung mucus in morning i dont know its bronchitis because i smoke 5 sugar in day

  • Reply Helmi Rh April 4, 2018 at 1:22 pm

    In the TDM sanThe first-order lobar and segmental bronchus are free with discretely thickened walls its branchectasis or no thank you

  • Reply Randy Larson April 4, 2018 at 2:33 pm

    Mary I've been watching some of your videos from the beginning and see quite a change in you and Peter how your features have changed into adulthood!! You guys are quite a handsome couple as my Grandma would say.
    Mary how much longer before you are considered for s transplant??
    I pray for guys everyday! God Bless you both.

  • Reply Courtney Haddon April 4, 2018 at 5:31 pm

    Hugs to you Mary xx

  • Reply Emma Weir April 4, 2018 at 5:32 pm

    When my brother sister and I were little we all went to the doctor to do the strep throat test. My sister was up first and as they were swabbing her throat she moved and projectile vomited all over the nurse! My brother and I couldn’t stop laughing, that poor nurse! ??

  • Reply danielle howard April 4, 2018 at 5:43 pm

    You should create a shirt saying “I have CF; I’m a Continuous Fighter!”

  • Reply Tana Giberson April 4, 2018 at 8:19 pm

    why don't they use your port for blood draws.

  • Reply Shell Pullar April 4, 2018 at 9:42 pm

    Please don’t have music on while your talking peter, it’s very distracting!

  • Reply Kayla Howell April 4, 2018 at 10:00 pm

    You may not reply but maybe some one will. Why do antib. effect your bone marrow? Is that a CF thing?

  • Reply Bethany Dial April 5, 2018 at 3:24 am

    Can I just say I am so proud of Peter for saying y’all! I am from the south so it is normal and I didn’t notice until Mary made the surprised face. So funny!

  • Reply Patti V. April 5, 2018 at 9:20 am

    I had a small intestine study where they put an NJ tube in and confirm via fluoroscopy then fill your small intestine full of contrast on a tilt table and then rush you through a CT scan. It is bad enough but then it also caused me some scary pain as it triggered the horrible pain that the study was supposed to help diagnose the cause of. I started gagging in the CT which they had said would be impossible as my stomach was sucked dry as part of the procedure and my throat would stay numb (it did not) so lucky me the gagging still happened. The nurse had never seen that before and somewhat flipped out and sucked my stomach dry again just in case! Yep Mary you know what throwing up an NJ tube feels like…ugh so not cool. I had forgotten about that even when you went through that just because mine was a test not for feeding but now it all comes flooding back. I turned colors and temps even before they got me to CT I have never seen a staff rush so quickly with wet washrags on my forehead and quiet voices and running in the halls. Although the procedure was hell when it should have only been moderate discomfort they never really used that factor for diagnosis which I think someone should have as it totally triggered my pain at a ten!

    Lol well you asked for our stories!

    My doc says I will write a book some day on the ridiculous things I have seen throughout my medical ordeals since I got surgical nerve damage in 2008. I always thought I would write a fictional novel (i already did technical writing as an electrical engineer for 11 years) but he is right the real saga I have been through (since meeting that doc, I must say…although I do love him) has been about the craziest journey possible. And each time we think we have surely seen it all then something or someone new and equally astounding happens. I could really use some peace even if just for a moment. Even when I took a bit of a break from all the docs and was just on one medication the manufacturer had a production error so they sent a replacement med but gave me the wrong dose for over 2 months and ironically when they changed it back I got very very sick from it and had a 2 year study go right down the drain. Thank God I recovered. Just one thing after another. Crazy! It's time to see a few new docs and no doubt I am concerned. But on we go…no choice. I used to tell my employees, You can do it! So they made me a poster of Rosie the Riveter and changed the "we" to "you". Love it.

  • Reply Ginny Bear April 5, 2018 at 3:37 pm

    Here in Seattle about ten days ago, I needed a flu swab, and I was told by the physician's assistant that they don't do the long swab anymore (as described so vividly my Mary and many others of you here), and she got the sample much closer to the front of my nose. I'm so sorry to hear this isn't more widespread!

  • Reply Have hope Instead of fear April 5, 2018 at 3:38 pm

    Mary you should get a vogmask I love mine it’s helped me not to get sick through the flu season and they are comfortable and the patterns are so pretty!

  • Reply Amanda Brierley aka Mandy's Magic Moments, April 5, 2018 at 4:43 pm

    Hi Mary , Peter and Ollie , I've never had the flu swab but every 8weeks since 2013 I go to the theatre/ operating room to have my tube in my tummy replaced, about a week before I go in the hospital to have the procedure I have a pre-operative assessment the nurse does my observations, takes blood, urine sample and then swabs my nose and groin area for MRSA . I must admit it's not a pleasant experience especially in the down below area , so to make it quick I have what I call my hospital underwear and long skirt for easy access , the nurses must think I've got no clothes with going in the same clothes every month lol. God Bless you all.

  • Reply Tay Katoo April 5, 2018 at 10:34 pm

    Mary, being extra weak from the bug you have will make you more susceptible to back injuries! Not to mention hurling a lung… Love y’all and hope you feel better soon! ?

  • Reply Andi Foster April 6, 2018 at 3:18 pm

    What program do you use to edit your videos? My children wanted to draw pictures for you. They say "Hi". I know it's not good (germs) for us to send you paper mail. It's there a way too send you things digitally?

  • Reply soph April 6, 2018 at 5:46 pm

    That window ice or heat pack is actually genius!!

  • Reply Angela Glaspy April 6, 2018 at 9:41 pm

    My flu swab in the fall didn't go up my nose hardly at all. And they didn't do a whole 10 secs.

  • Reply Ellie Buteyn April 7, 2018 at 2:23 am

    I’ve gotten strep several times and got strep test so many times, and it is awful.

  • Reply Katie’s World April 7, 2018 at 12:10 pm

    I love how happy and upbeat you are even with what your going through. I have a chronic illness as well and it got me addmited to the Pediatric ICU. I’ve,had blown veins so I understand how painful they can be.

  • Reply Elizabeth Bulfer April 8, 2018 at 7:26 am

    I call the flu swabs "brain swabs" ? I've had two, they're awful!

    Hopefully, it'll be negative. If it's positive though, IVIG is magical! I got so sick last time I had the flu ? (not CF, but chronic illnesses)

    (I'm catching up on vlogs)

  • Reply Lisaa April 8, 2018 at 9:16 am

    In uk nhs we have pay alot to watch tv no internet in hospitals either and food given each day is toast in morning a barm with slice meat no salad and one warm meal

  • Reply Nancy Williams April 13, 2018 at 1:29 am

    The cartoon went by fast, but I think it is by Jay Sidebotham who draws great Episcopal cartoons about all sorts of things.

  • Reply Melissa Michelle April 15, 2018 at 8:28 pm

    That giant baby head kind of freaks me out every time i see it. It's a really strange decoration.

  • Reply Mallory Stack April 16, 2018 at 2:45 pm

    In Michigan on 4-16-18 it is snowing and almost all school in the thum and higher in Michigan are closed

  • Reply Kaity Bugs April 17, 2018 at 3:32 am

    I hate when nurses blow out my vein with my iv's it sucks!

  • Reply deafinitely tay April 17, 2018 at 6:15 am

    Does she throw up every morning?

  • Reply Narda H April 19, 2018 at 4:21 am

    Y'all is good. I'm from Texas. Pretty much the only pronoun we use down here. ?

  • Reply manju koruthu October 24, 2018 at 2:05 am

    I am wearing ask for this video

  • Reply Kayla Patek December 29, 2018 at 12:12 am

    I got blood drawn today and blew a vein. Hurts ☹️ This is on the inside of my elbow

  • Reply LDN March 15, 2019 at 3:26 am

    I got a flu swab and I teared up and it hurt bad

  • Reply LDN March 15, 2019 at 3:26 am

    I got so many strep throat tests I cant count

  • Reply Kat Nicolette June 24, 2019 at 8:17 am

    I have had so many throat swabs but I don’t think I have ever had a flu swab (I don’t ever want one!!)

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